Phillippe
February 16, 2020...
How’s your Sunday morning going? Here’s ours.
I was making breakfast for the family, Philippe and Rémi were in the kitchen with me. I walked tot he fridge to grab the eggs, when all of a sudden I heard a loud thump. I thought Rémi had fallen off the counter because, for the life of me I cannot get him to stop climbing. Instead I saw Philippe shaking uncontrollably on the floor. His arm was twisted behind his back almost looking dislocated. He was having a SEIZURE, one of the strongest he’s had.
Normally his seizures happen when he’s asleep and starts to wake up. Very rarely do they happen when he’s awake. In fact I can only think of a couple of times when that’s happened.
Philippe developed seizures when he was 5 months old as a reaction to his scheduled immunizations. We ran him to the emergency room and spent the night there. After hours of observation we were sent to a neurologist. We’d travel once a month from Logan, UT to Salt Lake City for him to have his checkups which consisted of EEGs, MRIs, and other tests. We followed blindly what we were told to do, trusted. He was prescribed a couple seizure medications and we followed every thing we were asked to do. Meanwhile Philippe started drifting away and being completely absent. Years later that same prescription was banned. It was too late, the damage was done, Philippe has regressed dramatically and every milestone reached was lost.
We’ve worked hard, specially my wife who’s put endless hours of reading and researching. We’ve tried numbers of therapies, supplements, alternative medicine, but only few have shown little effect. He gained back those milestones, we were told he’d never walk and for a while we were told he wouldn’t live past the age of 2. He’s defied many odds, yet his challenges are still there.
We try our hardest to be good parents to him, but to be honest a lot of the time we just don’t know what to do or how to help him anymore. For now, we just keep going.
What does our future hold? Who knows, we’ll just take it one day at a time.
How’s your Sunday morning going? Here’s ours.
I was making breakfast for the family, Philippe and Rémi were in the kitchen with me. I walked tot he fridge to grab the eggs, when all of a sudden I heard a loud thump. I thought Rémi had fallen off the counter because, for the life of me I cannot get him to stop climbing. Instead I saw Philippe shaking uncontrollably on the floor. His arm was twisted behind his back almost looking dislocated. He was having a SEIZURE, one of the strongest he’s had.
Normally his seizures happen when he’s asleep and starts to wake up. Very rarely do they happen when he’s awake. In fact I can only think of a couple of times when that’s happened.
Philippe developed seizures when he was 5 months old as a reaction to his scheduled immunizations. We ran him to the emergency room and spent the night there. After hours of observation we were sent to a neurologist. We’d travel once a month from Logan, UT to Salt Lake City for him to have his checkups which consisted of EEGs, MRIs, and other tests. We followed blindly what we were told to do, trusted. He was prescribed a couple seizure medications and we followed every thing we were asked to do. Meanwhile Philippe started drifting away and being completely absent. Years later that same prescription was banned. It was too late, the damage was done, Philippe has regressed dramatically and every milestone reached was lost.
We’ve worked hard, specially my wife who’s put endless hours of reading and researching. We’ve tried numbers of therapies, supplements, alternative medicine, but only few have shown little effect. He gained back those milestones, we were told he’d never walk and for a while we were told he wouldn’t live past the age of 2. He’s defied many odds, yet his challenges are still there.
We try our hardest to be good parents to him, but to be honest a lot of the time we just don’t know what to do or how to help him anymore. For now, we just keep going.
What does our future hold? Who knows, we’ll just take it one day at a time.
On February 17, 2020, Phillippe's father shared the following post on Facebook . . .
There's been a few people that ask why was this even recorded, calling it or me stupid for doing so.
I record it because that's how I can show his doctor what the seizure was like so that he can review it. It is easier to record it and show it than to try to remember all the details. I usually place my phone on a surface or leaned against something so it can record.
If you ever are in front of someone having a seizure, here is what to do:
1. Keep other people out of the way.
2. Clear hard or sharp objects away from the person.
3. Don't try to hold him/her down or stop the movements.
4. Place her on her side, to help keep him/her airway clear.
5. Look at your watch at the start of the seizure, to time its length. (recording becomes very useful).
6. Don't put anything in him/her mouth.
It is OK to have an opinion. It’s never polite to call someone stupid. We’re sharing this for awareness. Please try and have some compassion and understanding. If you have questions, just ASK us.
There's been a few people that ask why was this even recorded, calling it or me stupid for doing so.
I record it because that's how I can show his doctor what the seizure was like so that he can review it. It is easier to record it and show it than to try to remember all the details. I usually place my phone on a surface or leaned against something so it can record.
If you ever are in front of someone having a seizure, here is what to do:
1. Keep other people out of the way.
2. Clear hard or sharp objects away from the person.
3. Don't try to hold him/her down or stop the movements.
4. Place her on her side, to help keep him/her airway clear.
5. Look at your watch at the start of the seizure, to time its length. (recording becomes very useful).
6. Don't put anything in him/her mouth.
It is OK to have an opinion. It’s never polite to call someone stupid. We’re sharing this for awareness. Please try and have some compassion and understanding. If you have questions, just ASK us.